Dear precious baby J,
Monday morning we will be getting up early to head to the Fetal Care Center at Childrens Hospital for a fetal MRI. (Hint: "fetal" refers to you, dear. It means "baby.")
In all my thirty years of life on this earth, I don't think anyone has ever cared to look at my brain. In the morning, doctors will be taking pictures of yours! And you're not even born! Your brain must be really special.
They've told me not to eat anything for the three hours leading up to the scan, so try to be patient until it's over. They need you to hold still for your glamour shots. I promise I'll get some pancakes or sausage biscuits as soon as we're done!
They also said it will be pretty noisy in there, but we live with your two sisters and brother so I think we'll adapt just fine.
These pictures will hopefully show all the doctors just exactly how unique your brain is. Later this week they will meet with Daddy and I to tell us what they think about it. About you. I must admit, I am curious to know what they think. But we already know what we think about you. No picture will change what we think about you or how much we already love you.
So please be brave for me, because Mommy is a little nervous about getting rolled into a large, noisy, magnetic toilet paper tube for an hour. Anything for my babies!
Let's get some sleep, baby girl.
Love,
Mommy
Sunday, January 4, 2015
Friday, January 2, 2015
Welcome!
Our family is growing.
A week ago that might have been accompanied by a cute ultrasound photo and and announcement of a baby girl that we are expecting to arrive in June. Now, in addition to growing in number, our family is also growing in depth, experience, faith, heartache and hope.
On December 31st, we learned from an ultrasound that our baby girl most likely has a rare brain malformation called Schizencephaly. This basically means that at some point early in the pregnancy, she experienced a stroke which disrupted the normal early formation of her brain. Now and forever her brain has clefts from the underdeveloped areas of the brain. The spectrum of possible outcomes is so wide and depends on where these clefts are located and which parts of the brain are affected.
We plan to use this blog (which is currently set to private-invitation only) to share what updates we receive and also to share what is on our minds. I named the blog "Faith is the Victory" because I want this part of our family story to be about faith and about our amazing God who knows us and knows our daughter and loves her even more than we do.
Eventually I'd like to make this blog public so that other families with this diagnosis can read about our journey and hopefully be encouraged, or at least know that others are out there walking this road with them.
Thanks for reading,
Ashley
A week ago that might have been accompanied by a cute ultrasound photo and and announcement of a baby girl that we are expecting to arrive in June. Now, in addition to growing in number, our family is also growing in depth, experience, faith, heartache and hope.
On December 31st, we learned from an ultrasound that our baby girl most likely has a rare brain malformation called Schizencephaly. This basically means that at some point early in the pregnancy, she experienced a stroke which disrupted the normal early formation of her brain. Now and forever her brain has clefts from the underdeveloped areas of the brain. The spectrum of possible outcomes is so wide and depends on where these clefts are located and which parts of the brain are affected.
We plan to use this blog (which is currently set to private-invitation only) to share what updates we receive and also to share what is on our minds. I named the blog "Faith is the Victory" because I want this part of our family story to be about faith and about our amazing God who knows us and knows our daughter and loves her even more than we do.
Eventually I'd like to make this blog public so that other families with this diagnosis can read about our journey and hopefully be encouraged, or at least know that others are out there walking this road with them.
Thanks for reading,
Ashley
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