Our family is growing.
A week ago that might have been accompanied by a cute ultrasound photo and and announcement of a baby girl that we are expecting to arrive in June. Now, in addition to growing in number, our family is also growing in depth, experience, faith, heartache and hope.
On December 31st, we learned from an ultrasound that our baby girl most likely has a rare brain malformation called Schizencephaly. This basically means that at some point early in the pregnancy, she experienced a stroke which disrupted the normal early formation of her brain. Now and forever her brain has clefts from the underdeveloped areas of the brain. The spectrum of possible outcomes is so wide and depends on where these clefts are located and which parts of the brain are affected.
We plan to use this blog (which is currently set to private-invitation only) to share what updates we receive and also to share what is on our minds. I named the blog "Faith is the Victory" because I want this part of our family story to be about faith and about our amazing God who knows us and knows our daughter and loves her even more than we do.
Eventually I'd like to make this blog public so that other families with this diagnosis can read about our journey and hopefully be encouraged, or at least know that others are out there walking this road with them.
Thanks for reading,
Ashley
Thanks so much for inviting me to share this part of your story, Ashley. I know God is working all this together for your ultimate good. Praying for you all, always.
ReplyDeleteThank you, friend!
DeleteYou and Chris have an incredibly strong faith in God and whatever challenges he gives you both will be accomplished because God will be there with you through it all. All of our prayers will be abundantly filling the heavens throughout your pregnancy and thereafter. May God's presence of love be felt with you now and forever.
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